Meet Faye, Mark and Morghan

The Kubena Family live in Houston, Texas USA

Morghan is going to tell you their story...

Hi, This is me, Morghan Christine Kubena, The Sungoddess.

I was born on September 14, 1996 in Houston, Texas where I live with my Mommy, Faye, Daddy, Mark and my two Golden Retrievers, Max and Ally.

I am my parent's only child and the only grandchild on my dad's side. As you might guess I am well loved and suitably spoiled.

This is Mommy and I having a little chat. I am telling her about my day. I was about 9 months old and a real little rascal then. Now I am 18 1/2 months I weigh 17 lbs. and am 28 1/2 inches tall.

I was born with a very large VSD, small ASD and PDA. I had open heart surgery at Texas Children's Hospital, here in Houston, when I was 2 months old. I also had eye surgery last November, to correct strabismus.

My favorite things to do are roll around on the floor, push myself up on my hands and knees and bang my toys where ever I can. Sometimes I get up on my hands and knees then put my head down and pump my legs as if I am crawling. I don't get very far, Mommy says it is because I don't move my arms. I am a good eater. I share Mommy and Daddy's food, after it has been through the food processor.

My parents and I hope that all the medical people that get to know me will learn that kids like me, Trisomy 18, should be given every opportunity to be the best WE can be. I am proud to say that in my short life I have changed some peoples opinions and impressions of what a Trisomy 18 child can do. My motto,

I am a CHILD not a disease.

Love,

Morghan Christine

p.s. Mommy says E-mail anytime!

E-Mail the Kubena-Kaufman Family

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