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Welcome to the Rainbow Family Community!!
We are delighted that you have joined us
and hope that you find what you are looking for - information, friendship
and support.
The Trisomy Medical List (Tri-Med for
short) is a "family" of parents, caregivers, health professionals, friends
and others whose lives have been touched by the diagnosis of one of the
rarer chromosomal anomalies such as a trisomy or other related disorders.
While Trisomy 18 (Edward's Syndrome) and Trisomy 13 (Patau's Syndrome)
families would seem to comprise the greatest numbers on the list, many
other "flavours" of chromosomal anomalies (meaning the number of the
chromosome and type of anomaly) are represented and very much a part of
our family.
At present we comprise over 600 families,
from all over the world, on the main trisomy list.
The Trisomy Medical List is for us to
share our experiences, emotions and the more technical aspects of a
trisomy diagnosis.
Most importantly we want this list to provide us all with a
safe place to share our inner-most feelings and experiences without fear
of harassment, judgement, blame, guilt, or silencing. Having said that,
because of their sensitive and controversial nature, some topics are best
left off the list unless they directly related to your
experience or supporting another member's experience.
For example: Religion, Life Support, Pregnancy Termination, and/or
Abortion.
Like any family we do have a few list "rules" that help
everyone enjoy a friendly and helpful forum. The rules are really very
simple.
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We ask that
no-one...
...tell another what to do or what they should have done.
...judge another person for their thoughts, experiences, beliefs
etc. |
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No flaming
(name-calling or making accusations)
If you find someone's post offensive, please let me know by emailing
me at
my personal email address:
If messages appear that are violations of the above or are
obviously hurtful
or offensive, my first action will be to ask that the discussion be
stopped.
If it is not, I will unsubscribe the appropriate list member(s).
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Don't
attach files to your mails
Please don't attach files of any type to your mails,
they cannot be processed by the list program. If you want to send
pictures to others on the list either e-mail them separately or you
can send them to
Sue
who will place them on the web for you. |
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Don't send
virus warnings to the list
Most virus warnings that you receive on the internet
are hoaxes. If you think that you are aware of a legitimate virus
warning forward it first to the list owner who will then post it to
the list if it's applicable. If you are unsure about the validity of
a particular virus warning a good place to check is
The Computer Incident
Advisory Capability
or
Symantec. |
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Do not send
chain letters to the list
Chain letters are not appropriate to send to the list
- most are hoaxes or urban myths. To check the validity a good site
is
Snopes Urban Legend Reference Pages. |
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Do not
forward private e-mails to the list
Do not forward private e-mails to the list without the consent of
the original writer. It is a breach of netiquette to forward private
e-mails without the authors express consent. |
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Do not send personal
details to the list
This includes addresses and phone
numbers. It is a dangerous practice and a good thing to remember
with any e-mail. The list mails are archived and any personal
details posted to the list will be freely available to anyone. If
someone requests personal information and you wish to share it - do
so privately in a personal mail. |
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From
time to time, I will find it necessary to send administrative or
otherwise important information to the list as a whole. All emails of that
nature will be prefaced with the word "ADMIN". Please read these notes as
soon as possible as they may contain information necessary or useful.
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If you
haven't yet subscribed please follow the link below. |
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We look forward to
hearing about you and welcome your contributions to our very special
community!
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Search
Trisomy Online or the Web
There is no charge for any
part of Trisomy Online but if you would like to contribute towards the
maintenance of this site by clicking on the secure Paypal donate
button or by clicking on the advertisement of our sponsors on the left
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